A mountain to climb

Setting off at the Airport for their trek up Mt Kilimanjaro

It is so hard to share stories about our struggle as a family and always brings me to tears as I write.

It is so moving when people just stand up and help us fight for our baby girl Aria.

Our friends the Dillon family, Gavin, Ricky and their lovely Dad are fulfilling lifelong dream - to Climb the largest mountain in Africa - Mount Kilimanjaro.

We are blessed that they offered to help raise funds for our 4y old Arias campaign to develop a bespoke ASO therapy and Gene Therapy for her uniqe mitochondrial disease. A reminder on what CureLonP1 is all about here

The Dillons are doing this as a family and taking quite a group of friends and extended family with them on this once in a lifetime adventure.

Follow their adventure

Every day Aria has a mountain to climb of her own. Please support her treatment by donating here

Get that prep in before hand!

this is what they have in store apparently!